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In September 2016 two auditors were elected by the General Assembly:

Prof. Dr. Ludwig Schaaf, Munich

Helga Schmelzer, Fürth

In 2016 EMENA received no funding, only one donation by a private member: € 161,50 and the regular membership fees.


 20017 Report

Membership fees 1.000,00 €
SHIRE 5.000,00 €
NOVARTIS 5.000,00 €
1.145,93 €

Expanation to the donations / grants:

1. Novartis:preparation MEN Care Survey

2. SHIRE: general donation

3. EURORDIS (Programme of Support to European Rare Disease Federations Meetings)



Since 2018  there is no funding by pharma companies.

The only funding sources are the membership fees.

In the years 2018, 2019, 2020, 2021, 2022 and 2023 EMENA doesn´t receive pharmaceutical industry funding.

Thank you for supporting our mission.