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The European MEN Alliance (EMENA) is an umbrella organisation formed in 2013 at a meeting in Munich, Germany.  The Alliance consists of equal representation from European patient groups who provide information and support services to patients with multiple endocrine neoplasia (MEN types 1, 2, 3 and 4) and from the expert multidisciplinary medical professionals who care for them.

On Monday 30th May, 2016, EMENA was formally established as a German non-profit organisation at a meeting in Munich 

In the General Assembly which took place on 30.09.2016 during the WorldMEN 2016 in Utrecht the following Executive Committee roles were agreed:

  • Petra Brügmann (Netzwerk für Hypophysen - und Nebennierenerkrankungen, Germany) - President
  • Martina Sammarco (AIMEN 1 & 2, Italy) - Vice President
  • Jo Grey (AMEND, United Kingdom) - Secretary
  • Karl Philipp Drewitz (Germany) - Treasurer

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20.09.2016    EMENA is new member to EURORDIS


EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 724 rare disease patient organisations in 64 countries.
EURORDIS is the voice of 30 million people affected by rare diseases throughout Europe.