Ihre Browserversion ist veraltet. Wir empfehlen, Ihren Browser auf die neueste Version zu aktualisieren.


The European MEN Alliance (EMENA) is an umbrella organisation formed in 2013 at a meeting in Munich, Germany.  The Alliance consists of equal representation from European patient groups who provide information and support services to patients with multiple endocrine neoplasia (MEN types 1, 2, 3 and 4) and from the expert multidisciplinary medical professionals who care for them.

On Monday 30th May, 2016, EMENA was formally established as a German non-profit organisation at a meeting in Munich 

In the General Assembly which took place on 30.09.2016 during the WorldMEN 2016 in Utrecht the following Executive Committee roles were agreed:

  • Petra Brügmann (Netzwerk für Hypophysen - und Nebennierenerkrankungen, Germany) - President
  • Martina Sammarco (AIMEN 1 & 2, Italy) - Vice President
  • Jo Grey (AMEND, United Kingdom) - Secretary
  • Karl Philipp Drewitz (Germany) - Treasurer

February 28th is Rare Disease Day


The European MEN Alliance (EMENA) launched a patient survey on Rare Disease Day to assess the quality of care for these rare disorder patients throughout Europe. We asked that all patients with MEN1, MEN2a, MEN2b and MEN4 take a few minutes to complete the survey about the care you receive. The survey was available in English, Dutch, German, French, Spanish and Italian

The anonymous results of this important survey are shared where it matters – to you, and to the Endocrine European Reference Network (ENDO ERN). The ERNs were set up by the European Union to improve equality of access to the best care and treatments for rare diseases throughout Europe. The results will form an important knowledge base that will be used by the Endocrine ERN in this process.

Meanwhile we presented the results during several national meetings and online conferences. The complete results are published in the ENDOCRINE supplemental issue for Rare Disease Day 2021


Since January 2022 EMENA is proud member of the European Society of Endocrinology. Thanks for the trust. We hope to help to raise awareness among more endocrinologists in Europe for our disease area. Hopefully we can contact more MEN patients - especially in Eastern Europe. We support the EUROPEAN HORMONE DAY . For more informations :