The European MEN Alliance (EMENA) is an umbrella organisation formed in 2013 at a meeting in Munich, Germany. The Alliance consists of equal representation from European patient groups who provide information and support services to patients with multiple endocrine neoplasia (MEN types 1, 2, 3 and 4) and from the expert multidisciplinary medical professionals who care for them.
On Monday 30th May, 2016, EMENA was formally established as a German non-profit organisation at a meeting in Munich
In the General Assembly which took place on 30.09.2016 during the WorldMEN 2016 in Utrecht the following Executive Committee roles were agreed:
20.09.2016 EMENA is new member to EURORDIS
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 724 rare disease patient organisations in 64 countries.